This is short and sweet with something longer to follow soon. I just wanted to let everyone know that I'm okay. The good news? I don't have cancer! Although the good doctor does want to see me back in four months rather than six (because I did not want to get an expensive scan unless he truly thought it necessary), I am mostly one hundred percent good to go.
The not-bad-but-sorta-bad-but-relatively-good-compared-to-having-cancer news is that there is indeed a reason I've been so tired. I have a sleep disorder, but not the kind that keeps me up all night. I have been diagnosed with severe idiopathic hypersomnia. What does that mean? It means I'm excessively sleepy for no apparent reason. The doctor reached this conclusion after a night and day observation that included brain monitors, cameras, and all sorts of unpleasantries. Fatigue can be a common long-term side effect of lymphoma and its treatment, so I'll take my sleepy life and be grateful for it. During the studies, if I had reached REM cycle sleep during the day just one more time, I would have been ruled an official narcoleptic. As it is, I've had to start taking narcolepsy medicine, but I don't have to worry about losing driving privileges or any of that sort of thing.
So I should be back full strength soon, kiddos. Just give me a few days to get over these medication jitters. :)
Monday, January 25, 2010
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mmm sleep disorders gotta love 'em. i'm narcoleptic ... what fun! i hated the meds though, what did the prescribe you to? i had to change it a few times before they gave me one i didn't feel so jittery on...
ReplyDeleteNuvigil...what do they have you on? So funny we're both exceedingly sleepy girls. :)
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